Greatness

Is greatness worth it? It seems to me that in order to do things that will be remembered after you die, in order to be the kind of person that changes the world you’ve got to give up a lot. And I’m just not sure it’s worth it. Martin Luther King Jr. had many affairs. Gandhi watched his wife die rather than violate her body with a simple shot that would save her. Steve Jobs was eccentric and odd in extreme ways. High level pastors often make the news for their secret lives that include soliciting prostitutes, affairs, and addiction. It really seems like the people who accomplish great things inevitably sacrifice much.

Most of us want to be remembered for something good or great that we’ve done. Most of us want our eulogy to be an inspiring story of greatness. But is it worth the cost?

Is it enough for my eulogy to say that I tried to be a good father, a good husband, and a follower of Jesus? Am I satisfied with being faithful in ordinary things rather than excelling in the extraordinary?

My Wife Just Can't Understand

My wife just can’t understand what it’s like to go through what I’m going through. She can’t understand what it’s like to have all the extra hormones that I had to deal with while I was hopped up on steroids for six months. Crying at a moments notice, being moody, irrational, and generally having a different emotional disposition are all things that she just can’t understand.

Try as she may my beautiful wife who is chronically thin has no idea what its like to pour on thirty pounds in just a few months. Even worse, knowing that the extra pounds are not permanent keeps one from justifying purchasing more clothes to cover the new girth. She just absolutely doesn’t get it! She can’t imagine how awkward it is to need to use a rubber band to hold my pants together ’cause the button won’t reach the buttonhole.

She’s never had something foreign growing inside her, sucking her life’s energy and strength to feed its own growth. It’s as if I have a parasite living in my back…but its not a parasite, it’s a tumor. There’s no way she can comprehend the loss of control one feels with something like that being inside of you, one with you, and yet completely foreign. She just can’t get it.

Jess doesn’t know what its like to be nauseous day in and out, for food to not sound good for months at a time, and to be stuck on your back all day every day. She doesn’t understand how boring it is to be on bed rest, to not feel good enough to read, and yet to realize that there truly isn’t anything good to watch on TV. Nope, she doesn’t get it.

I keenly remember when I was at the hospital the transition that happened as I lost any need for privacy. So many doctors and nurses had looked at my body, poked and prodded it, that I lost any sense that there was anything to hide. Jess can’t understand that. She can’t understand what its like to be exposed so many times and so regularly that you forget you might have anything to be ashamed of.

Jess can’t understand how taxing it is to have to go to the doctor all the time, to feel like you’ve got a chain connecting you with your doctor ’cause you aint ever going to get to far from ’em. No way, no how she understands that frustration.

Speaking of frustration!!! She has absolutely no way to understand how annoying it is to have to pee constantly! I swear I’m like an eighty year old man (my apologies to any eighty year old men I just offended)! I pee every five minutes…and there’s no way my wife gets that. She can’t understand what that’s like for sure. And it’s not just pee either, no way she understands what severe constipation feels like. It is a miserable feeling that she just can’t sympathize with.

Thank God I got a vasectomy last year.

Cancer Blogs…

Below are a majority of the blogs I have written that capture my journey of fighting cancer. They are listed chronologically and I have highlighted in bold the blog posts that capture the more significant moments.

The Beginning of the Story (May, 2011)

Awkward Emotions Before the Surgery

Last Thoughts Before Surgery

Rehab (June, 2011)

The Role of Community in the Story

Report from the Hospital

Initial Test Results

Looking for a Cause

My Son’s Good News

The Struggle of Waiting

The Pathology Reports

Thoughts on death and healing

Good news: Clean MRI

Goodbye Glioblastoma (July, 2011)

Why Steroids are Bad

Blood Clots!

The Good, the Bad, and What’s Next (August, 2011)

Random Update

Top 15 Things I’ve Learned

99 people I’ve got to say thanks to (September, 2011)

What is Recovery?

Those Wonderful MRIs

Discovering Artifacts in my Brain

Chemo Round Two (October, 2011)

Some Cannot Handle Cancer

Surprising Stories I Never Thought I’d Have

Radiation Explained

The Monotony of Normal (November, 2011)

Cancer is Like Being Pregnant (one of my favorite blog posts!)

Worse than Death (December, 2011)

Wounded Healers

December’s Update

How our Needs are Met (January, 2012)

Amulets and Charms

Healthy Ryan vs. Sick Ryan

My Story in 800 words or less

General Update

Choosing to Hope

Hope in the Face of New Tumors (February, 2012)

How we deal with crisis

You said I’m dying?

What Sick People Don’t Tell You

Caught off Guard

Missing the Hospital (March 2012)

Parenting Through Cancer

Preparing for MRI’s (April, 2012)

“Daddy I don’t want to die”

Remembering reports, results, and everything in-between

New Terrible Test Results

Talking to the kids about death

An update before Disneyland(!)

How to create dying memories

Three months and counting

The Hero’s Journey

Blaming God for Cancer

Exponential Conference Video

It’s Not About the Money

Touched by an Angel (May, 2012)

New Cars and Death

Whose Story is This?

Video: My Story

Finally! Good Test Results (June, 2012)

Affirming the Awkwardness

Do I Want to Die?

Article About What I Wish I Were Told About Cancer

Learning to Receive (July, 2012)

Random Medical Update

I see…

I’m sitting here in a cafe and I’m fascinated by the things I see.

I see a beautiful woman with dreadlocks, brown sweater, and a hoop through her nose.

I see a comfy chair made out of burlap sacks.

I see a man with three coffee drinks in front of him.

I see a man wearing a jacket that’s too short.

I see a man wearing socks with sandals.

I see Don Cheadle

I see a window filled with pastries of the most delicious kind.

I see mocha pots suspended from the ceiling.

I see nine iPhones.

I see a booger suspended from a woman’s nose only a few feet away.

I see biscotti.

I see a lambswool vest.

I see a man with feet as big as my chest…no joke.

I see beards.

I see plaid.

I see a blog post that is slightly random, potentially boring, and partially filled with half-truths. (if you also see this please keep it to yourself!)

One Year Later

This is a post from my friend Chris. I love what he says here and I’m going to simply repost it straight up. You can read his ramblings here: http://www.chrismartin.com

One year ago today, weighing in at a whopping 273 pounds, I started the Medifast program and lost a lot of weight and inches.  Here is a look at where I started and where I am today:

  • Weight:  273 lbs. to 147 lbs. (-126 lbs.)
  • Upper Arms:  16? to 10.5? (-5.5?)
  • Chest:  50? to 36.5? (-13.5?)
  • Waist:  54? to 34? (-20?)
  • Hips:  50? to 35? (-15?)
  • Thighs:  25? to 18? (-7?)

I won’t lie, the numbers are staggering and amazing.  I am amazed that I was able to accomplish something that I have always dreamed of.  However, this morning, my friend Scott Carden asked me a series of difficult questions on Twitter:  ”How do you feel about yourself today vs. a year ago?  How much of a different person are you?  Inside and Out?”

These are great questions that have really caused me to reflect upon my internal and external appearances.  I have always been overweight which led me to constantly dream about being thin.  I would often visualize myself residing in a fat suit that at anytime I could unzip, step out of and instantly gain favor, love and acceptance from those around me.

For 20 years I fostered that belief and it created an expectation that if I was skinny, my life would be better.  That I would feel better about myself.  That I would do what I wanted to do with my life, because I wouldn’t have to deal with how I looked anymore.

How do I feel about myself now?  I am now dealing with those false expectations.  My life didn’t change when I weighed in at 147.  My insecurities still exist.  I am still me on the inside.  At times, I look in the mirror and still see the old me.  Sometimes I don’t even recognize myself.

I did notice that how people treated me changed.  When I was heavy, my worth was determined by others based on what I could do for them creatively (website design and development, graphic design, video production and photography).  But as I lost weight, people started to value me because of my physical appearance.  That was really hard for me to accept at first, because I still wanted to be valued based on what I could do.

I can honestly say that I have been successful because in addition to learning how to eat healthy foods, I was also seeing a counselor in order to deal with the emotional issues of why I was eating.  I have always been an emotional eater.  I eat to numb my pain.  I remember as a kid, eating bags of Chips Ahoy cookies in one sitting or downing a whole container of frozen cool whip, just because I was bored and hurting deep inside.  Emotions are a powerful force and food is my addiction.  My drug.  That is the biggest thing I have learned about myself in this whole process and I accept full responsibility for my actions in the past, present and future.

I feel like I am rambling a bit, but the honest truth is that while the exterior has changed tremendously, my interior needs a lot of work.  The exterior was easy compared to the journey that I am now on.

At the end of the day, I am grateful for losing the weight, because it has led me to a place of acceptance and desire to be emotionally healthy, even though the work is a million times harder when dealing with the interior of my life.

Thank you Scott for asking these tough questions.